Page:United States Statutes at Large Volume 94 Part 1.djvu/525

 PUBLIC LAW 96-265—JUNE 9, 1980

94 STAT. 475

or to provide medical assistance under its plan approved under title XIX, to individuals who are not eligible therefor, or in amounts or 42 USC 1396. under circumstances in which the State does not make such payments or provide such medical assistance, the Secretary shall reimburse such State for the non-Federal share of such payments or 42 USC 1381. assistance from amounts appropriated to carry out title XVI. "(2) With respect to the participation of recipients of supplemental security income benefits in experimental, pilot, or demonstration projects under this subsection— "(A) the Secretary is not authorized to cany out any project that would result in a substantial reduction in any individual's total income and resources as a result of his or her participation in the project; "(B) the Secretary may not require any individual to participate in a project; and he shall assure (i) that the voluntary participation of individuals in any project is obtained through informed written consent which satisfies the requirements for informed consent established by the Secretary for use in any experimental, pilot, or demonstration project in which human subjects are at risk, and (ii) that any individual's voluntary agreement to participate in any project may be revoked by such individual at any time; "(C) the Secretary shall, to the extent feasible and appropriate, include recipients who are under age 18 as well as adult recipients; and "(D) the Secretary shall include in the projects carried out under this section such experimental, pilot, or demonstration projects as may be necessary to ascertain the feasibility of treating alcoholics and drug addicts to prevent the onset of irreversible medical conditions which may result in permanent disability, including programs in residential care treatment centers.". (c) The Secretary shall submit to the Congress a final report with Report to respect to all experiments and demonstration projects carried out Congress. 42 USC 1310 under this section no later than five years after the date of the note. enactment of this Act. ADDITIONAL FUNDS FOR DEMONSTRATION PROJECT RELATING TO THE TERMINALLY ILL

SEC. 506. (a) The Secretary of Health and Human Services is authorized to provide for the participation, by the Social Security Administration, in a demonstration project relating to the terminally ill which is currently being conducted within the Department of Health and Human Services. The purpose of such participation shall be to study the impact on the terminally ill of provisions of the disability programs administered by the Social Security Administration and to determine how best to provide services needed by persons who are terminally ill through programs over which the Social Security Administration has administrative responsibility. (b) For the purpose of carrying out this section there are authorized to be appropriated such sums (not in excess of $2,000,000 for any fiscal year) as may be necessary.

42 USC 1395ZZ note.

Appropriation authorization.

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