Page:United States Statutes at Large Volume 92 Part 3.djvu/807

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PUBLIC LAW 95-622—NOV. 9, 1978

92 STAT. 3439

" (e) COMPENSATION.— (1) Members of the Commission shall each be entitled to receive the daily equivalent of the annual rate of basic pay in effect for grade GS-18 of the General Schedule for each day 5 USC 5332 (including travel time) during which they are engaged in the actual note. performance of duties vested in the Commission. " (2) While away from their homes or regular places of business in the performance of services for the Commission, members of the Commission shall be allowed travel expenses, including per diem in lieu of subsistence, in the same manner as persons employed intermittently in the Government service are allowed expenses under section 5703 of title 5 of the United States Code. u DUTIES OF THE COMMISSION

" SEC. 1802. (a) STITDIES.— (1) The Commission shall undertake studies of the ethical and legal implications of— " (A) the requirements for informed consent to participation in research projects and to otherwise undergo medical procedures; " (B) the matter of defining death, including the advisability of s- developing a uniform definition of death; " (C) voluntary testing, counseling, and information and education programs with respect to genetic diseases and conditions, taking into account the essential equality of all human beings, born and u n b o r n; " (D) the differences in the availability of health services as determined by the income or residence of the persons receiving the services; " (E) current procedures and mechanisms designed (i) to safeg u a r d the privacy of human subjects of behavioral and biomedical research, (li) to ensure the confidentiality of individually identifiable patient records, and (iii) to ensure appropriate access of patients to information continued in such records, and " (F) such other matters relating to medicine or biomedical or behavioral research as the President may designate for study by the Commission. The Commission shall determine the priority and order of the studies required under this paragraph. " (2) The Commission may undertake an investigation or study of any other appropriate matter which relates to medicine or biomedical or behavioral research (including the protection of human subjects of biomedical or behavioral research) and which is consistent with the purposes of this title on its own initiative or at the request of the head of a Federal agency. " (3) I n order to avoid duplication of effort, the Commission may, in lieu of, or as part of, any study or investigation required or otherwise conducted under this subsection, use a study or investigation conducted by another entity if the Commission sets forth its reasons for such use. " (4) Upon the completion of each investigation or study undertaken by the Commission under this subsection (including a study or investigation which merely uses another study or investigation), it shall report its findings (including any recommendations for legislation or administrative action) to the President and the Congress and to each Federal agency to which a recommendation in the report applies. y •

42 USC 300v-l.

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Report to President and Congress,

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