Page:United States Statutes at Large Volume 90 Part 1.djvu/458

 90 STAT. 408

Appropriation authorization.

PUBLIC LAW 94-278—APR. 22, 1976 relating to genetic diseases and to disseminate such information and materials to persons providing health care, to teachers and students, and to the public generally in order to most rapidly make available the latest advances in the testing, diagnosis, counseling, and treatment of individuals respecting genetic diseases. The Secretary may, under such program, make grants to public and nonprofit private entities and enter into contracts with public and private entities and individuals for the development and dissemination of such materials. "(b) For the purpose of making payments pursuant to grants and contracts under this section, there are authorized to be appropriated $30,000,000 for fiscal year 1976, $30,000,000 for fiscal year 1977, and $30,000,000 for fiscal year 1978. u RESEARCH PROJECT GRANTS AND CONTRACTS

42 USC 300b-l. 42 USC 241.

Sickle cell anemia and eooley's anemia research, priority.

"SEC. 1102. In carrying out section 301, the Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities and individuals, for projects for (1) basic or applied research leading to the understanding, diagnosis, treatment, and control of genetic diseases, (2) planning, establishing, demonstrating, and developing special programs for the training of genetic counselors, social and behavioral scientists, and other health professionals, (3) the development of programs to educate practicing physicians, other health professionals, and the public regarding the nature of genetic processes, the inheritance patterns of genetic diseases, and the means, methods, and facilities available to diagnose, control, counsel, and treat genetic diseases, and (4) the development of counseling and testing programs and other programs for the diagnosis, control, and treatment of genetic diseases. In making grants and entering into contracts for projects described in clause (1) of the preceding sentence, the Secretary shall give priority to applications for such grants or contracts which are submitted for research on sickle cell anemia and for research on Cooley's anemia. 'VOLUNTARY PARTICIPATION

42 USC 300b-2.

"SEC. 1103. The participation by any individual in any program or portion thereof under this part shall be wholly voluntary and shall not be a prerequisite to eligibility for or receipt of any other service or assistance from, or to participation in, any other program. u APPLICATION S; ADMINISTRATION OF G R A N T S A N D CONTRACT PROGRAMS

42 USC 300b-3.

"SEC. 1104. (a) A grant or contract under this part may be made upon application submitted to the Secretary at such time, in suCh manner, and containing and accompanied by such information, as the Secretary may require. Each applicant shall— "(1) provide that the programs and activities for which assistance under this part is sought will be administered by or under the supervision of the applicant; "(2) provide for strict confidentiiality of all test results, medical records, and other information regarding testing, diagnosis, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) gives informed consent to be released, or (B) statistical data compiled without reference to the identity of any such patient;

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