Page:United States Statutes at Large Volume 122.djvu/4076

 12 2 STA T .4053PUBLIC LA W 110 – 3 7 4 —O CT. 8, 2008 diagnose d c ondi t ions , to p atients, consistent w it h the p ur pose descri b ed in section 2( b ) ( 1 )o f the P renata l l y and Postnatally D iagnosed C onditions A wareness Act .‘ ‘(2) ELIG I B L E E NT IT Y . —I n this subsection, the ter m ‘eligible entity ’ means— ‘‘(A) a S tate or a political subdi v ision of a State ‘‘( B ) a consortium of 2 or more States or political sub - divisions of States; ‘‘(C) a territory; ‘‘(D) a health facility or program operated by or pursu- ant to a contract with or grant from the Indian H ealth Service; or ‘‘(E) any other entity with appropriate e x pertise in prenatally and postnatally diagnosed conditions (including nationally recogni z ed disability groups), as determined by the Secretary. ‘‘( 3 )DI S T R IB U TI O N.—In distributing funds under this sub- section, the Secretary shall place an emphasis on funding part- nerships between health care professional groups and disability advocacy organizations. ‘‘(c) PRO V ISION O F INFOR MA TION TO PROVI D ERS.— ‘‘(1) IN GENERAL.—A grantee under this section shall ma k e available to health care providers of parents who receive a prenatal or postnatal diagnosis the following

‘‘(A) U p-to-date, evidence-based, written information concerning the range of outcomes for individuals living with the diagnosed condition, including physical, develop- mental, educational, and psychosocial outcomes. ‘‘(B) Contact information regarding support services, including information hotlines specific to Down syndrome or other prenatally or postnatally diagnosed conditions, resource centers or clearinghouses, national and local peer support groups, and other education and support programs as described in subsection (b)(2). ‘‘(2) INFORMATIONAL RE Q UIREMENTS.—Information provided under this subsection shall be— ‘‘(A) culturally and linguistically appropriate as needed by women receiving a positive prenatal diagnosis or the family of infants receiving a postnatal diagnosis; and ‘‘(B) approved by the Secretary. ‘‘(d) R E P ORT.— N ot later than 2 years after the date of enact- ment of this section, the G overnment Accountability O ffice shall submit a report to Congress concerning the effectiveness of current

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