Page:United States Statutes at Large Volume 118.djvu/619

 118 STAT. 589 PUBLIC LAW 108–216—APR. 5, 2004 ‘‘(B) the most effective donation and recovery practices. ‘‘(2) An evaluation of living donation practices and proce dures. Such evaluation shall include an assessment of issues relating to informed consent and the health risks associated with living donation (including possible reduction of long term effects). ‘‘(3) An evaluation of— ‘‘(A) federally supported or conducted organ donation efforts and policies, as well as federally supported or con ducted basic, clinical, and health services research (including research on preservation techniques and organ rejection and compatibility); and ‘‘(B) the coordination of such efforts across relevant agencies within the Department and throughout the Fed eral Government. ‘‘(4) An evaluation of the costs and benefits of State donor registries, including the status of existing State donor registries, the effect of State donor registries on organ donation rates, issues relating to consent, and recommendations regarding improving the effectiveness of State donor registries in increasing overall organ donation rates. ‘‘(5) A plan to improve federally supported or conducted organ donation and recovery activities, including, when appro priate, the establishment of baselines and benchmarks to measure overall outcomes of these programs. Such plan shall provide for the ongoing coordination of federally supported or conducted organ donation and research activities.’’. SEC. 7. NATIONAL LIVING DONOR MECHANISMS. Part H of title III of the Public Health Service Act (42 U.S.C. 273 et seq.) is amended by inserting after section 371 the following: ‘‘SEC. 371A. NATIONAL LIVING DONOR MECHANISMS. ‘‘The Secretary may establish and maintain mechanisms to evaluate the long term effects associated with living organ donations by individuals who have served as living donors.’’. SEC. 8. STUDY. Not later than December 31, 2004, the Secretary of Health and Human Services, in consultation with appropriate entities, including advocacy groups representing those populations that are likely to be disproportionately affected by proposals to increase cadaveric donation, shall submit to the appropriate committees of Congress a report that evaluates the ethical implications of such proposals. Deadline. Reports. 42 USC 273a.

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