Page:United States Statutes at Large Volume 115 Part 1.djvu/849

 PUBLIC LAW 107-84—DEC. 18, 2001 115 STAT. 827 "(A) provide for a broad range of research and education activities relating to biomedical, epidemiological, psychosocial, and rehabihtative issues, including studies 2 of the impact of such diseases in rural and underserved 4JU communities; "(B) identify priorities among the progreims and activi- -" ties of the National Institutes of Health regarding such f»ff; diseases; and "(C) reflect input from a broad range of scientists, patients, and advocacy groups. "(2) CERTAIN ELEMENTS OF PLAN. —The plan under paragraph (1) shall, with respect to each form of muscular dystrophy, provide for the following as appropriate: "(A) Research to determine the reasons underlying the incidence and prevalence of various forms of muscular dystrophy. "(B) Basic research concerning the etiology and genetic ' links of the disease and potential causes of mutations. "(C) The development of improved screening techniques. "(D) Basic and clinical research for the development and evaluation of new treatments, including new biological agents. "(E) Information and education programs for health care professioneds and the public. "(0 REPORTS TO CONGRESS.— The Coordinating Committee shall biennially submit to the Committee on Energy and Commerce of the House of Representatives, and the Committee on Health, Education, Labor, and Pensions of the Senate, a report that describes the research, education, and other activities on muscular dystrophy being conducted or supported through the Department of Health and Human Services. Each such report shall include the following: "(1) The plan under subsection (e)(1) (or revisions to the plan, as the case may be). "(2) Provisions specifying the amounts expended by the Department of Health and Human Services with respect to various forms of muscular dystrophy, including Duchenne, myotonic, FSHD and other forms of muscular dystrophy. "(3) Provisions identifying particular projects or types of projects that should in the future be considered by the national research institutes or other entities in the field of research on all muscular dystrophies. "(g) PUBLIC INPUT. —The Secretary shall, under subsection (a)(1), provide for a means through which the public can obtain information on the existing and planned programs and activities of the Department of Heedth and Human Services with respect to various forms of muscular dystrophy and through which the Secretary can receive comments from the public regarding such programs and activities. "(h) AUTHORIZATION OF APPROPRIATIONS.—For the purpose of carrying out this section, there are authorized to be appropriated such sums as may be necessary for each of fiscal yeeirs 2002 through 2006. The authorization of appropriations established in the preceding sentence is in addition to any other authorization of appropriations that is available for conducting or supporting through the National Institutes of Health research and other activities with respect to muscular dystrophy.".

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