Page:United States Statutes at Large Volume 114 Part 2.djvu/284

 114 STAT. 1166 PUBLIC LAW 106-310—OCT. 17, 2000 services in reducing the morbidity and mortality caused by heritable disorders in newborns and children. "(b) DEMONSTRATION PROGRAMS. —^A demonstration program conducted under a grant under this section shall be designed to evaluate and assess, within the jurisdiction of the entity receiving such grant— "(1) the effectiveness of screening, counseling, testing or specialty services for newborns and children at risk for heritable disorders in reducing the morbidity and mortality associated with such disorders; "(2) the effectiveness of screening, counseling, testing or specialty services in accurately and reliably diagnosing heritable disorders in newborns and children; or "(3) the availability of screening, counseling, testing or specialty services for newborns and children at risk for heritable disorders. "(c) ELIGIBLE ENTITIES. —To be eligible to receive a grant under subsection (a) an entity shall be a State or political subdivision of a State, or a consortium of two or more States or political subdivisions of States. 42 USC 300b-10. "SEC. 1111. ADVISORY COMMITTEE ON HERITABLE DISORDERS IN NEWBORNS AND CHILDREN. " (a) ESTABLISHMENT.— The Secretary shall establish an advisory committee to be known as the Advisory Committee on Heritable Disorders in Newborns and Children' (referred to in this section as the Advisory Committee'). "(b) DUTIES. —The Advisory Committee shall— "(1) provide advice and recommendations to the Secretary concerning grants and projects awarded or funded under section 1109; "(2) provide technical information to the Secretary for the development of policies and priorities for the administration of grants under section 1109; and "(3) provide such recommendations, advice or information as may be necessary to enhance, expand or improve the ability of the Secretary to reduce the mortality or morbidity from heritable disorders. "(c) MEMBERSHIP.— "(1) IN GENERAL.— The Secretary shall appoint not to exceed 15 members to the Advisory Committee. In appointing such members, the Secretary shall ensure that the total membership of the Advisory Committee is an odd number. "(2) REQUIRED MEMBERS.— The Secretary shall appoint to the Advisory Committee under paragraph (1)— "(A) the Administrator of the Health Resources and Services Administration; "(B) the Director of the Centers for Disease Control and Prevention; "(C) the Director of the National Institutes of Health; "(D) the Director of the Agency for Healthcare Research and Quality; "(E) medical, technical, or scientific professionals with special expertise in heritable disorders, or in providing screening, counseling, testing or specialty services for newborns and children at risk for heritable disorders;

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