Page:United States Statutes at Large Volume 112 Part 4.djvu/390

 112 STAT. 2681-361 PUBLIC LAW 105-277—OCT. 21, 1998 Effective date. 42 USC 1397b note. (2) The Secretary and the OPTN may utihze the services of a mediator in conducting the discussions under paragraph (1), An individual may not be selected to serve as the mediator unless the Secretary and the OPTN both approve the selection of the individual to so serve, and the individual agrees that, not later than June 30, 1999, the individual will submit to the congressional committees specified in subsection (b)(2)(B) a report describing the extent of progress that has been made through the discussions under paragraph (1). (d)(1) Beginning on the date of enactment of this Act, the OPTN shall provide to the Secretary, the Institutes of Medicine, and the Comptroller General, upon request, any data necessary to assess the effectiveness of the Nation's organ donation, procurement and organ allocation systems, or to assess the quality of care provided to all transplant patients, and analysis of such data in a scientifically and clinically valid manner. If necessary, the OPTN may provide additional data as they deem appropriate. (2) The OPTN shall make available to the public timely and accurate program-specific information on the performance of transplant programs, lliese data shall be updated as frequently as possible, and the OPTN shall work to shorten the time period for data collection and analysis in producing its center-specific outcomes report, including severity adjusted long term survival rates. Such data shall also include such other cost or performance information including but not limited to transplant program-specific information on waiting time within medical status, organ waitings, and refusal of organ offers. (e) Data provided under subsection (d) shall be specific (if possible) to individual transplant centers and must be determined in a scientifically and clinically valid manner. (f) Any disclosure of patient specific medical information under subsection (d) shall be subject to the restrictions contained in the Freedom of Information Act, the Privacy Act, and State laws. (g) Of the amount appropriated in this title for "OFFICE OF THE SECRETARY-GENERAL DEPARTME^^^AL MANAGEMENT", $500,000 shall, not later than 30 days after the date of the enactment of this Act, be transferred to the Comptroller General for purposes of carrying out the studies required and specified in this section. (h) For purposes of this section: (1) The term "Comptroller General" means the Comptroller General of the United States. (2) The term "Organ Procurement and Trsinsplantation Network" means the network operated under section 372 of the Public Health Service Act. (3) The term "Secretsiry" means the Secretary of Health and Human Services. SEC. 214. (a) Section 2003(c) of the Social Security Act (42 U.S.C. 1397b(c)) is amended by striking paragraph (8) and inserting the following: "(8) $2,299,000,000 for the fiscal year 1998;". (b) The amendment made by this section takes effect immediately after the amendments made by section 8401 of the Transportation Equity Act for the 21st Century take effect. SEC. 215. The Consolidated Laboratory Building (Building 50) at the National Institutes of Health is hereby named the Louis Stokes Laboratories.

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