Page:United States Statutes at Large Volume 112 Part 1.djvu/658

 112 STAT. 632 PUBLIC LAW 105-196—JULY 16, 1998 Transplantation of the Health Resources and Services Administration.". (b) PROGRAM FOR UNRELATED MARROW TRANSPLANTS.— (1) IN GENERAL.— Section 379(b) of the Public Health Service Act (42 U.S.C. 274k(b)) is amended by redesignating paragraph (7) as paragraph (8), and by striking paragraphs (2) through (6) and inserting the following: "(2) carry out a program for the recruitment of bone marrow donors in accordance with subsection (c), including with respect to increasing the representation of racial and ethnic minority groups (including persons of mixed ancestry) in the enrollment of the Registry; "(3) carry out informational and educational activities in accordance with subsection (c); "(4) annually update information to account for changes in the status of individuals as potential donors of bone marrow; "(5) provide for a system of patient advocacy through the office established under subsection (d); "(6) provide case management services for any potential donor of bone marrow to whom the Registry has provided a notice that the potential donor may be suitably matched to a particular patient (which services shall be provided through a mechanism other than the system of patient advocacy under subsection (d)), and conduct surveys of donors and potential donors to determine the extent of satisfaction with such services and to identify ways in which the services can be improved; "(7) with respect to searches for unrelated donors of bone marrow that are conducted through the system under paragraph (1), collect and analyze and publish data on the number and percentage of patients at each of the various stages of the search process, including data regarding the furthest stage reached; the number and percentage of patients who are unable to complete the search process, and the reasons underlying such circumstances; and comparisons of transplant centers regarding search and other costs that prior to transplantation are charged to patients by transplant centers; and". 42 USC 274k (2) REPORT OF INSPECTOR GENERAL; PLAN REGARDING note. RELATIONSHIP BETWEEN REGISTRY AND DONOR CENTERS. —The Secretary of Health and Human Services shall ensure that, not later than 1 year after the date of the enactment of this Act, the National Bone Marrow Donor Registry (under section 379 of the Public Health Service Act) develops, evaluates, and implements a plan to effectuate efficiencies in the relationship between such Registry and donor centers. The plan shall incorporate, to the extent practicable, the findings and recommendations made in the inspection conducted by the Office of the Inspector General (Department of Health and Human Services) as of January 1997 and known as the Bone Marrow Program Inspection. (c) PROGRAM FOR INFORMATION AND EDUCATION.— Section 379 of the Public Health Service Act (42 U.S.C. 274k) is amended by striking subsection (j), by redesignating subsections (c) through (i) as subsections (e) through (k), respectively, and by inserting after subsection (b) the following subsection: " (c) RECRUITMENT; PRIORITIES; INFORMATION AND EDUCATION. — "(1) RECRUITMENT; PRIORITIES.—The Registry shall carry out a program for the recruitment of bone marrow donors.

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