Page:United States Statutes at Large Volume 108 Part 5.djvu/452

 108 STAT. 3942 PUBLIC LAW 103-382—OCT. 20, 1994 Policy Council for Families of Children with Disabilities, under section 707(a). "(13) SECRETARY. —The term 'Secretary' means the Secretary of Health and Human Services. "(14) SERVICE COORDINATION. — The term 'service coordination*— "(A) means those family-centered and family-directed activities that assist and enable families to receive rights and procedural safeguards and to gain access to social, medical, legal, educational, and other supports and services; and "(B) includes— "(i) follow-along services that assure, through a continuing relationship between a family of a child with a disability and an individual or entity, that the changing needs of the child and family are recognized and appropriately met; "(ii) the coordination and monitoring of services provided to children with disabilities and their families; "(iii) the provision of information to children with disabilities and their families about the availability of services and assistance to such children and their families in obtaining appropriate services; and "(iv) the facilitation and organization of existing social networks, and natural sources of support, and community resources and services. "(15) STATEWIDE SYSTEM OF FAMILY SUPPORT. — The term 'statewide system of family support for families of children with disabilities' means a family-centered and family-directed, culturally competent, community-centered, comprehensive, statewide system of family support for families of children with disabilities developed and implemented by a State under this part that— "(A) addresses the needs of all families of children with disabilities, including unserved and underserved populations; and "(B) addresses such needs without regard to the age, type of disability, race, ethnicity, or gender of such children or the particular major life activity for which such children need the assistance. "(16) SYSTEMS CHANGE ACTIVITIES.—The term 'systems change activities' means efforts that result in laws, regulations, policies, practices, or organizational structures— (A) that are family-centered and family-directed; "(B) that facilitate and increase access to, provision of, and funding for, family support services for families of children with disabilities; and "(C) that otherwise accomplish the purposes of this part. " (17) UNSERVED AND UNDERSERVED POPULATIONS.— The term 'unserved and underserved populations' includes populations such as individuals from racial and ethnic minority backgrounds, economically disadvantaged individuals, individuals with limited-English proficiency, individuals from underserved geographic areas (rural or urban), and specific groups of individuals within the population of individuals with disabilities, including individuals with disabilities attributable to

�