Page:United States Statutes at Large Volume 100 Part 2.djvu/78

 100 STAT. 1180

PUBLIC LAW 99-459—OCT. 8, 1986

Public Law 99-459 99th Congress Joint Resolution Oct. 8, 1986 [S.J. Res. 245]

Designating "National Epidermolysis Bullosa Awareness Week".

Whereas the incidence and prevalence of epidermolysis bullosa presents a significant health problem in the United States; Whereas epidermolysis bullosa is an inherited disorder showing widespread blistering and skin erosions which result in pain, scarring, deformity, contractures, malnutrition, anemia, gastrointestinal problems, dental problems, and carcinoma; Whereas an estimated ten to fifteen thousand Americans of both sexes are afflicted with the disease, and another twenty to thirty thousand Americans may be carriers of this disease; Whereas the Nation faces a continuing need to support innovative research into the causes, treatment, and cure of epidermolysis bullosa; and Whereas it is appropriate to focus the Nation's attention upon the plight of epidermolysis bullosa sufferers and upon the continuing peril epidermolysis bullosa poses to humanity: Now, therefore, be it Resolved by the Senate and House of Representatives of the United States of America in Congress assembled, That the week of December 1, 1986, through December 7, 1986, is designated "National Epidermolysis Bullosa Awareness Week", and the President of the United States is authorized and requested to issue a proclamation calling upon the citizens of the United States to observe the week with appropriate programs, ceremonies, and activities. Approved October 8, 1986.

LEGISLATIVE HISTORY—S.J. Res. 245: CONGRESSIONAL RECORD, Vol. 132 (1986): May 5, considered and passed Senate. Oct. 1, considered and passed House.

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